Marek and Maciek are twin brothers born in 1989. They had happy childhood together. With time they went separate ways. Maciek started a career, got married and became a singer of a successful rock band. Marek did not have same chance. When they were 22 Marek started to feel weak. After two years he was diagnosed with motor neurone disease (SLA, ALS). ALS is a thermal incurable disease. It traps its victims in an immobile body and kills within 5 years. Marek died a month after taking this photographs. He wanted to share his story.